|dc.description.abstract||Objectives: The following thesis is presented within two separate pieces of work. A systematic
literature review (SLR) aimed to evaluate the individual characteristics and psychometric
properties of four dementia screening tools. These were the Dementia Questionnaire for People
with Learning Disabilities (DLD) (Evenhuis, 2007), the Dementia Scale for Down Syndrome
(DSDS) (Gedye, 1995), the Dementia Screening Questionnaire for Individuals with Intellectual
Disabilities (DSQIID) (Deb et al, 2007a) and the Adaptive Behaviour Dementia Questionnaire
(ABDQ) (Prasher et al, 2004). The empirical research (ER) aimed to evaluate the clinical utility
and longitudinal accuracy of two of these tools; the DLD and the ABDQ in a clinical population
with intellectual disability (ID) and Down syndrome (DS).
Methods: For the SLR a comprehensive list of electronic academic databases were searched
to identify studies which included information relating to the psychometric properties of the
DLD, DSDS, DSQIID and the ABDQ. Information within the studies was then extracted and
rated using two quality assessment measures. These were the Characteristics of Assessment
Instruments for Psychiatric Disorders in Persons with Intellectual Developmental Disabilities
(CAPS-IDD) (Zeilinger et al, 2013b) and the Qualsyst (Kmet, 2004). For the ER, a repeated
measures MANOVA was used to assess change over time between two groups of people with
intellectual disabilities and Down syndrome; one with dementia and one without.
Results: In the SLR, 16 studies were identified and rated using the CAPS-IDD and the
Qualsyst. Detailed information related to the dementia screening tools and quality ratings of
the papers are provided.
In the ER both the ABDQ and the DLD demonstrated a clear difference between those who
develop dementia and those who do not, with those in the ‘dementia’ group exhibiting
increasing scores over time.
Conclusions: The SLR concludes that the evidence base for these dementia screening tools
remain limited. The largest evidence base was evidenced for the DLD.
The ER concludes that the ABDQ and the DLD are useful tools to differentiate between those
who develop dementia and those who do not. Further analysis incorporating the exploration of
individual component items of tools is recommended.||en