BACKGROUND: There is a great deal of literature pertaining to White parents' experiences
of having a child with a learning disability. Some of this literature focuses on parents'
experiences of the disclosure of diagnosis of learning disability and/or an autism
spectrum disorder, as well as how they come to accept and adjust to a diagnosis.
However, very little research has investigated the experiences of South Asian families.
MATERIALS AND METHODS: This qualitative study used a grounded theory methodology to
explore the experiences of seven South Asian parents in relation to the disclosure of
diagnoses as well as issues relating to adjustment post-diagnosis. Semi-structured
interviews were used to gather data.
RESULTS: The results outline variable experiences in relation to the process of adjustment
following a diagnosis. Four core categories were derived from the data to represent
stages in a hypothesised model of adjustment. These were: 'obtaining a diagnosis';
'constructing meanings'; 'finding possibilities for action'; and 'reconstructing roles and
identities'. These core categories were embedded within a number of important
CONCLUSIONS: The theoretical and clinical implications of the hypothesised model of
adjustment are discussed. A methodological critique is provided before outlining
reflections on the findings generated.