| dc.description.abstract | Background: The vast majority of research into the experiences of people
with learning disabilities (LD) in regard to bereavement and grief involves
the collection of data from second-hand sources, or via quantitative
measures. This qualitative study aimed to explore the lived experiences of
bereavement and grief in a group of adults with mild LD.
Methods: Semi-structured interviews were carried out with 13 adults (aged
20-72 years) with mild LD who had experienced bereavement within the last
3 years. Data were analysed using interpretative phenomenological analysis
(IPA).
Results: Qualitative analysis highlighted 4 themes which mediated
individuals’ experience of bereavement and grief: (1) Intra- and
inter-personal experiences, (2) Core beliefs about life and death, (3) Level of
inclusion, and (4) Continuing relationship with the deceased. Participants
also showed an ability to evaluate their lived experience in terms of having
been helpful or otherwise.
Conclusions: Overall, the findings suggest that individuals with mild LD
experience bereavement and grief in a manner much like the general
population, in that they experience a wide range of oscillating emotions, are
subject to the same (if not more) losses, and hold similar values when it
comes to maintaining their relationship with the deceased. The study
endorses the role of clear and open communication, the facilitation of
informed choice, and a culture of inclusion. | en |
