Siblings’ experiences of having a brother or sister with an eating disorder: a qualitative exploration
dc.contributor.advisor
Power, Michael
en
dc.contributor.advisor
Gillanders, David
en
dc.contributor.advisor
Newman, Emily
en
dc.contributor.advisor
Duffy, Fiona
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dc.contributor.author
Varnell, Catherine Jessica
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dc.date.accessioned
2016-02-24T15:56:58Z
dc.date.available
2016-02-24T15:56:58Z
dc.date.issued
2014-11-28
dc.description.abstract
Background: Family members of people with eating disorders are often involved in
caregiving. To better understand the impact on them, outcomes such as burden, distress, and
less frequently quality of life (QoL) are taken into consideration. Despite advancements in the
knowledge base surrounding the experiences of adult and parental caregivers of individuals
with eating disorders, particularly Anorexia Nervosa, there is a scarcity of qualitative
exploration from the sibling perspective, particularly that of adolescent siblings. Objectives:
The systematic review aimed to identify research and synthesise findings relating to informal
caregivers’ quantitative ratings of quality of life in the context of eating disorders. The
primary study aimed to explore in detail the lived experience of adolescent siblings with a
brother or sister with Bulimia Nervosa or Eating-Disorder-Not-Otherwise-Specified.
Method: Applying a priori inclusion and exclusion criteria to papers identified from a
combination of systematic searches of electronic databases and hand searches of other
pertinent literature, revealed eight studies to be included for review. Within the qualitative
study, eight semi-structured interviews were carried out with siblings (aged 12-19-years) who
had a brother or sister with an eating disorder. An interpretative phenomenological analysis
approach was utilised to analyse interview data. Results: The review highlighted low ratings
for aspects of quality of life for informal caregivers of individuals with eating disorders, and
some emerging comparative and subgroup differences. Three super-ordinate themes emerged
from the qualitative exploration: Sibling Identity, The Vulnerable Social ‘Self’, and Intra- and
Inter-Personal Coping. Discussion: Overall the findings provide particular insight into the
quality life of informal caregivers and the unique experiences, feelings and various roles of
adolescent siblings of people with eating disorders. Implications regarding caregiver support
and the needs of siblings specifically are considered. Strengths and limitations, as well as
future research possibilities are outlined for both the systematic review and empirical study.
en
dc.identifier.uri
http://hdl.handle.net/1842/14222
dc.language.iso
en
dc.publisher
The University of Edinburgh
en
dc.subject
adolescents
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dc.subject
eating disorders
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dc.subject
Interpretative Phenomenological Analysis
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dc.subject
IPA
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dc.subject
lived experience
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dc.subject
siblings
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dc.subject
Anorexia Nervosa
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dc.subject
quality of life
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dc.subject
caregivers
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dc.title
Siblings’ experiences of having a brother or sister with an eating disorder: a qualitative exploration
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dc.type
Thesis or Dissertation
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dc.type.qualificationlevel
Doctoral
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dc.type.qualificationname
DClinPsychol Doctor of Clinical Psychology
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